My cankles have come to the blog today to share an important message!
This weekend I did THE most – you know the kind of weekend where schedules collide and everything comes to a big crescendo and you know your self care is going to slip if you participate? Well that was my weekend. Kalamazoo Pride happened (I had PLENTY of fun lol), and my semi-annual dance recital, and a campaign event for a team I’m on. I also spent some time with some people who cause me emotional distress.
My body hit what I like to refer to as the emergency brake in the middle of the Pride festival on Saturday (see pic of cankles). My RA has honestly been in the best possible place for the past 2-3 years than it has been for a very, very long time and so many days, I get to feel pretty normal, and I’m so grateful for that. Things like this inevitably happen and you know what? It’s okay, it’s not your fault/my fault, we shouldn’t have “known better”, and we DEFINITELY do not need to beat ourselves up about it. Sure we can become aware of certain triggers that are either potentially connected to flares or definitely connected to flares, but even then, things can and do frequently change.
Some parts of preventing a flare do come from our behavior, but a lot of them don’t and are difficult to understand.
Sometimes we play it safe and sometimes we push our boundaries when it comes to health, that’s part of living with a chronic illness.
The best we can do is listen to our bodies, give ourselves as much grace as is humanly possible, and make adjustments that make the most sense to us. At the end of the day, I believe it’s all about sustainability and returning to balance over and over again. And here’s a friendly reminder that there is not a right or wrong way to live with a chronic illness, and your spoons are just that: YOURS! To spend in whatever ways are meaningful to you and align with your values, no explanation to others needed.
Here’s to spending your spoons in the ways that fit YOU!